May is… National Stroke Awareness Month. Join the conversation!

A stroke, the stop of blood flow to the brain, is a common brain injury: occurring every 40 seconds in America, according to the CDC.  While strokes are more common in the 65+ age range, they can happen to anyone and at any time.  By Presidential Proclamation, National Stroke Awareness Month has been recognized in May since 1989, as a time to explain the symptoms of stroke, which requires immediate medical help, and to highlight ways of stroke prevention.

“In observance of National Stroke Awareness Month, NINDS (National Institute of Neurological Disorders and Stroke), Million Hearts, American Academy of Neurology (AAN), and the American Stroke Association are co-hosting a Twitter chat to discuss stroke risk factors, the importance of keeping your brain healthy, and the latest stroke research. #BrainforLife will take place Wednesday, May 2, from 1-2 p.m. ET.  Medical experts, including NINDS Director Dr. Walter Koroshetz and AAN President Dr. Ralph L. Sacco, will be on hand to answer questions.”

Brain Injury Awareness Month Across the Country: State Recognition

Brain injury has been an ongoing issue in America since its founding.  Though federally honored, BIAM is still finding legislative recognition on the state level.  For example, House Resolution 741 (HR 741), introduced by Pennsylvania’s Tina Pickett, was only introduced earlier this month and adopted (188-0) on March 14.  A similar bill will soon be voted on in the PA Senate.  (Though this marks the official recognition of the Month, the State has honored and provided education on brain injury at least since 2011.)  In 2013, New Jersey officially recognized it as a month-long state observance, whereas legislators in Alaska were relatively early adopters, passing a law to recognize the Month back in the 2007 – 2008 Congressional year.  (Some states still do not officially note Brain Injury Awareness Month.  However, groups in these states, such as the BIAA, do provide events specifically designed for the Month.)

As for events, New York State, in Tonawanda, located near Niagara Falls, lights the City Hall blue for the entire month to show solidarity and the need for public education on brain injury.  (Blue is the official color of Brain Injury Awareness Month, as designated by the Brain Injury Association of America.) On Brian Injury Advocacy Day, March 20, survivors/advocates met with members of the New York State Legislature to thank legislators for what they have done thus far and to teach them about the impact of brain injury, including how they can further help prevent it, as well as support those with brain injury.  While some legislators may have been tempted by the promise of pie, Kansas legislators and lawmakers met at the Topeka State House on March 21 to learn more about brain injury.  The Nebraska Brain Injury Advisory Council, which is sponsored by the Nebraska Department of Education, launched a mobile-responsive website that, “presents resources and reference information for anyone affected to assist in navigating for the best possible outcome.”

The above is just a short representation of activities throughout the country related to Brain Injury Awareness Month.  Please search online to find more past and upcoming local events.

Brain Injury Awareness Month Across the Country: Capitol Hill

Brain injury affects America as a whole, and its importance should be recognized on Capitol Hill.  As part of this national recognition, on March 5, Press Secretary Sarah Sanders introduced Retired Marine Corps Sergeant John Peck to the press.   Peck’s story is remarkable and therefore must be noted in its entirety: “Sergeant Peck suffered a traumatic brain injury in Iraq during his first tour of duty.  Then, after two years of therapy, he re-enlisted and deployed to Afghanistan.  While there, he stepped on an IED and lost both arms and legs.  He spent two years at Walter Reed, and in 2016 received a double arm transplant.  He is now doing physical and occupational therapy at Walter Reed, and doing incredibly well.”

Earlier this week, our legislators further honored brain injured Americans at Brain Injury Awareness Day, which is always honored on Capitol Hill during Brain Injury Awareness Month.  Generally, from what I can determine, the day is simply associated with Brain Injury Awareness Month and, therefore, in March.  However, Brain Injury Awareness Day is not honored on a specific calendar day.  (For example, in 2017 it was on Wednesday, March 22.  This year it was on March 20.)  The point of the day, though, is unchanging: to increase knowledge and awareness of brain injury with our elected officials.

As noted in an earlier article, the theme of 2018 Brain Injury Awareness Month is Change Your MindScheduled by the Congressional Brain Injury Task Force, co-chaired by Reps. Bill Pascrell, Jr. (NJ) and Thomas J. Rooney (FL), the events this past Tuesday were a Brain Injury Awareness fair, a Congressional briefing and a reception celebrating Brain Injury Awareness Month.

When I can find the audio of the Capitol Hill Congressional briefing, I will post it on this site.  Additionally, as I find state events honoring the month, I will post them.

2018 Brain Injury Awareness Month

This month, March 2018, Americans recognize Brain Injury Awareness Month.  The theme for this year, through 2020, is Change Your Mind.  The significance of this theme is to show the ongoing public awareness campaign to provide, “a platform for educating the general public about the incidence of brain injury and the needs of people with brain injuries and their families.”  Many posters and webpages note the statistics, commonality and horror of brain injury in the United States.  Yes, as the Brain Injury Association of America notes, “Brain injury changes the way you think, act, move and feel.”  However, in some ways, for the better.  In this sense, part of what the BIAA is seeking to do is de-stigmatization.  (The theme for 2015 to 2017, #NotAlone, is still very apropos.) Search on Twitter or use the hangtags #ChangeYourMind, #BrainInjuryAwarenessMonth or simply #braininjury.

Note: From what I can find, Brain Injury Awareness Month is not a federally designated month.  However, “the Department of Defense (DoD) and the Brain Injury Association of America recognize March as Brain Injury Awareness month to increase awareness of Traumatic Brain Injury (TBI).”  Additionally, the month has been legally designated by many states.  New Jersey, for example, signed into law Section 36:2-87, to mark March as Brain Injury Awareness Month, in 2013.

#GivingTuesday

What do you do with all the cash you saved on Black Friday and Cyber Monday?  Well, 6 years ago #GivingTuesday was officially introduced.  (The hashtag in the name is a clear indication that the global day of giving was instigated on social media and peoples’ desire to help.)  On the day’s website, one can find most of the charities/non-profits in their area.  Though all the listed charities/non-profits are well-deserving of support, specifically related to brain injury, there are links to the Brain Injury Alliances in various states and other charities, nonprofits and hospitals that help the brain injured.  (One foundation that is not found in the search, but is well-worth donated to, especially for those residing in the North New Jersey area, is the Kessler Foundation.)

“Inclusion Drives Innovation” Throughout America

In addition to the President, “26 governors have joined together to show their support [for employment of disabled workers] through public proclamations, executive orders and press statements.”  Brain injury is a non-partisan issue that affects individuals from all states.  Gov. Asa Hutchinson (R-AR) noted the importance of informing the public of the skills of the disabled population this month because, “people with disabilities offer a wide range of expertise and play an integral role in our efforts to build an inclusive community and strong economy.” (Read to view Arkansas’ NDEAM events.)  Gov. John Bel Edwards (D-LA) released a video to explain to his constituents the importance of the month, saying that, “our businesses and communities can greatly benefit from the integrated, competitive employment of persons with disabilities.”

Even in states that do not officially recognize NDEAM with government-sanctioned events, they still inform their citizens of brain injury and celebrate the contributions of brain injury survivors.  The Kessler Foundation in East Hanover, NJ, for example, awarded a $265,743 Grant to the University of New Hampshire on October 10, 2017, to conduct, “the first national survey to look at the effectiveness of the practices that employers use to recruit, hire, train, and retain people with disabilities in their organizations, from the unique perspective of supervisors of employees with and without disabilities.”  The article 26 Governors Celebrate Employment Opportunities for People with Disabilities, from which the opening quote in this article is taken, may not have it listed as a state that is honoring NDEAM, but the California Department of Rehabilitation had an open house on October 18, 2017 to inform employers on, “the various ways to create a diverse workforce that includes persons with disabilities.”

2017 NDEAM: Inclusion Drives Innovation

This past month has been a time of, “reflecting [on] the important role that different perspectives play in workforce success,” as October is National Disability Employment Awareness Month.  This year, President Trump issued a proclamation to honor NDEAM in which he recognized that, “every American who is willing and able to work should have the opportunity… this includes the 30 million American adults with disabilities.”  Statistically, it is unfortunate to see that NDEAM has not had enough of an effect in its 70+ years of existence.  According the Bureau of Labor Statistics, the employment rate for disabled Americans has risen, from 18.1 percent in September 2016 to 19.6 percent this September.  However, this is still far below the employment rate for non-disabled Americans, which was 65.5 percent in September 2016 and 66 percent this year.

President Trump referred to the above statistic, when he said that, “more employers should recognize the fresh perspectives and skills these men and women can add to an innovation-focused workforce.”  Reflecting this statement, in 2017, the theme of NDEAM has been “Inclusion Drives Innovation“.

June is… National Aphasia Awareness Month

The National Institute of Health defines aphasia as, “a disorder that results from damage to portions of the brain that are responsible for language… The disorder impairs the expression and understanding of language as well as reading and writing. Aphasia may co-occur with speech disorders, such as dysarthria or apraxia of speech, which also result from brain damage.”  Brain damage is, of course, the defining effect of a traumatic brain injury and other neurological disorders.

The United States government has designated June as National Aphasia Awareness Month.  The subtitle of an article from yesterday’s Huffington Post states what I see as the main purpose of the Month: “Just because you have word-finding problems does not mean you have diminished intelligence!”  Educating the public is the key to Aphasia Awareness, so that those who have a neurological disorder and those who know an individual who has a neurological disorder recognize that their innate intelligence is still very much present.

Trump Acknowledges Brain Injury Awareness Day

“The White House expressed support for brain injury advocates attending the Congressional Brain Injury Task Force’s (CBITF) Brain Injury Awareness Day on Capitol Hill on Wednesday, March 22.”  To accompany the day, President Trump penned a letter to everyone who participated in the event.  An overview of the letter shows that it largely is a list of facts about brain injury that is available to the public already.  (There appears to be no letter from an earlier president to compare it with, though few presidents had the opportunity to show their support, as the Congressional Brain Injury Task Force was only created in 2001.) 

The letter shows that it is comprised of a ten-line paragraph focused on those who suffer a brain injury while serving in the military.  While I am definitely not dismissing those who suffer a brain injury while on the call of duty, the following paragraph that focuses on civilians with brain injury is only five sentences.  As for statistics, the Center of Disease Control estimates that 1.7 million Americans sustain a brain injury each year .  The Department of Defense estimates that about 17,500 soldiers suffered a brain injury last year.  Unfortunately, that means that the percentage of soldiers who are afflicted by a brain injury is much higher; however, the number of civilian Americans who suffer from brain injuries is still a higher number and much more present. Still, the focus on the military makes sense for President Trump, as military is one of the chief priorities of the Trump Presidency.

I am not sure what could have made this acknowledgement letter satisfactory to concerned Americans and the brain injury community and, in fact, there is no singular answer to that.  Even if you disagree with the exact wording of the letter, the fact that the President is recognizing that brain injury is a very important and serious issue in America is a definite positive.

HEADS UP! March is… Brain Injury Awareness Month

First recognized in 2009, the CDC designates March as Brain Injury Awareness Month in order to “protect kids and teens by raising awareness and informing action to improve prevention, recognition, and response to concussion and other serious brain injuries.”  This year, the awareness month has been titled “HEADS UP!”, as it primarily involves educational activities about concussion diagnosis and treatment.  As information regarding the month’s Awareness activities becomes available, this blog will update this post.  (View this year’s Facebook page about the month.)